Living with ADPKD
You are not alone - ADPKD affects approximately 1 in 400 to 1 in 1000 people
worldwide, with about 35,000 Canadians currently living with ADPKD.
Eat a kidney-friendly diet. A dietitian can talk to you about which foods to avoid.
Exercise for 30 minutes most days.
Maintain a weight that’s healthy for you.
Manage blood pressure.
Quit smoking or using tobacco and avoid alcoholic beverages.
Reduce stress.
Drink enough water and other noncaffeinated beverages.
Get at least 7 hours of sleep each night.
Remember to take all of your medication exactly as your healthcare provider prescribes.
Talking to others about your diagnosis is a very personal decision.
When planning a conversation with your family about your condition, consider the following tips:
Friends can help offer support and listen to your experiences with ADPKD. Since they may not understand your condition, you may have to be prepared to answer their questions about ADPKD.
Before telling your employer about your diagnosis, consider how your condition may impact your job through special accommodations or flexibility to take time off for appointments and procedures.
Raise your voice every September 4th
Raise awareness of kidney disease
National organization dedicated to polycystic kidney disease (PKD) and providing support to those affected by PKD.
Resource for people with kidney disease and their families.
U.S.-based organization dedicated to PKD.
U.K.-based initiative focused on helping improve lives of those affected by PKD.
Private discussion forum supported by The Kidney Foundation of Canada where you can connect online with other people living with or affected by kidney disease for information and support.
Consult your doctor with any questions about your disease and your treatment, or to find out if the advice on this website is appropriate for you.
For more information on LUPIN-TOLVAPTAN, call toll free: 1 844-587-4623
